After a diagnosis, when time may be short
What to do first when the timescale has changed, and how to get something worth keeping without turning the last months into a project.
Record something this week, even if it is fifteen minutes on a phone and even if it is not the conversation you imagined having. The voice matters more than the completeness. Then, if there is time and appetite, go back for the things only they can answer: names in photographs, who people were, what they want said.
If this is why you are here
- Somebody has had news, and the timeline changed shape overnight.
- You do not want to make it into a project, and you also do not want to leave it.
- One recording this week would be enough to start.
Do the smallest thing first
Not the whole life. Not a plan. One recording, this week.
Fifteen minutes of them talking about anything, recorded on a phone, is worth more than a beautifully organised project that does not happen. People underestimate how much they will want the voice itself: the way they say your name, the laugh, the particular phrasing nobody else uses.
If you do nothing else after reading this, do that.
What to ask when there may not be a second chance
If time is genuinely short, the order changes. Ask the things that only they can answer.
- The photographs. Who is in them, where, and what year. This information disappears completely and fast.
- Names and connections. Which cousin, whose brother, who fell out with whom and whether it mattered.
- The things they want said. To particular people, at particular moments. Some of it will be for a grandchild who is currently small.
- What they want you to stop worrying about. People often have something specific here, and they rarely volunteer it.
Everything else, the childhood, the first job, the holidays, is wonderful and it is replaceable by other people’s memories. These four are not.
Keeping it humane
Short. Twenty or thirty minutes. Tiredness shows up in the answers before it shows up in the room.
Stop early. Always leave them wanting to carry on rather than relieved it is over.
Do not perform the situation. You do not have to explain why you are asking, and most people would rather you did not. It can simply be that you want to hear about the shop, or the ship, or the street.
Let other people in. A grandchild asking the same question gets a different answer, and often a better one.
Accept the day you get. Some days the conversation will not happen. That is not a failure and it does not mean the chance has gone.
Where medical and practical things belong
This is about the story, not about care. If you need advice about treatment, symptoms or what happens next, that comes from the medical team looking after them, not from a website about writing.
What I can say is that families who record something, however rough, are relieved they did. That is as far as my experience goes and I am not going to pretend it goes further.
If you want help quickly
I can usually move fast when a timescale is short, and I will tell you straight away if I cannot.
What helps me help you: how much time you think there is, whether they know why you are asking, whether they tire easily, and whether anything has already been recorded. Message me with those four things and I will tell you what is realistic.
If the honest answer is that a full project is not the right thing, I will say that too. Sometimes the right advice is a phone, a quiet afternoon and the hundred questions, and no involvement from me at all.